Under Oregons law
permitting physician-assisted suicide, the Oregon Department of Human
Services (DHS) previously called the Oregon Health Division (OHD) is required to collect information,
review a sample of cases and publish a yearly statistical report. (1)
Since the law, called the "Death with Dignity Act," went into effect in 1997,
eight official reports have been published. However, due to major flaws in the law and the
state's reporting system, there is no way to know for sure how many or under what
circumstances patients have died from physician-assisted suicide.
Statements made by individuals who
have been involved in assisted suicide in Oregon -- those who implement
it, compile official reports about it, or prescribe the lethal drugs --
clearly show that the law's "safeguards" are not protective and
that effective monitoring is close to non-existent. (2)
Members of a British House of Lords
Committee traveled to Oregon seeking information regarding Oregon's
assisted-suicide law for use in their deliberations about a similar
proposal that, as of early 2006, is still under consideration in
Parliament. The public and press were not present during the closed-
door hearings. However, the proceedings, which included the exact
wording of questions and answers, were published in three volumes by the
House of Lords.
Statements from the 744-page second
volume of those proceedings are included in this fact sheet. None of
those statements were made by opponents of Oregon's law.
THE STATISTICS
Assisted-suicide deaths reported during the first eight years
Official Reports: 246
Actual number: Unknown
The latest annual report indicates that reported assisted-suicide deaths have increased
by more than 230% since the first year of legal assisted suicide in Oregon.(3) The number of deaths, however, could be far greater. From the time the law went into effect, Oregon officials in charge of
formulating annual reports have conceded “there’s no way to know if
additional deaths went unreported” because Oregon DHS “has no regulatory
authority or resources to ensure compliance with the law.” (4)
The DHS has to rely on the word of doctors who prescribe the lethal
drugs.(5) Referring to physicians' reports, the reporting division
admitted: "For that matter the entire account [received from a
prescribing doctor]
could have been a cock-and bull story. We assume, however, that
physicians were their usual careful and accurate selves."(6)
The Death with Dignity law contains no penalties for doctors who do
not report prescribing lethal doses for the purpose of suicide.
Complications occurring during assisted suicide
Official Reports: 13 (12 instances of vomiting & 1
patient who did not die)
Actual Number: Unknown
Prescribing doctors may not know about all complications since, over
the course of eight years, physicians who prescribe the lethal drugs for
assisted suicide were present at only 19.5% of reported deaths.(7)
Information they provide might come from secondhand accounts of those
present at the death (8) or may be based on guesswork.
When asked if there is any systematic way of finding out and recording
complications, Dr. Katrina Hedberg who was a lead author of most of
Oregon's official reports said, "Not other than asking
physicians."(9) She acknowledged that, "after they write the
prescription, the physician may not keep track of the
patient."(10) Dr. Melvin Kohn, a lead author of the eighth
annual report, noted that, in every case that they hear about, "it is
the self-report, if you will, of the physician
involved."(11)
Complications contained in news reports are not included in official
reports
- Patrick Matheny received his lethal prescription from Oregon Health
Science University
via Federal Express. He had difficulty when he tried to take the drugs four months later.
His brother-in-law, Joe Hayes, said he had to "help" Matheny die. According to
Hayes, "It doesnt go smoothly for everyone. For Pat it was a huge problem. It
would have not worked without help." (12)
Referring to the Matheny case, Dr. Hedberg said that "we do not
know exactly how he helped this person swallow, whether it was putting a
feed tube down or whatever, but he was not prosecuted..."(13)
The annual report did not take note of this situation.
- Speaking at Portland Community College, pro-assisted-suicide attorney
Cynthia Barrett described a botched assisted suicide. "The man was at home. There was
no doctor there," she said. "After he took it [the lethal dose], he began to
have some physical symptoms. The symptoms were hard for his wife to handle. Well, she
called 911. The guy ended up being taken by 911 to a local Portland hospital. Revived. In
the middle of it. And taken to a local nursing facility. I dont know if he went back
home. He died shortly some
.period of time after that
"
(14)
Overdoses of barbiturates are known to cause vomiting as a person begins to lose
consciousness. The patient then inhales the vomit. In other cases, panic, feelings of
terror and assaultive behavior can occur from the drug-induced confusion.
(15) But Barrett
wouldnt say exactly which symptoms had taken place in this instance. She has refused
any further discussion of the case. Complications are not
investigated
-
David Prueitt took the prescribed lethal dose in the presence of his family and
members of Compassion & Choices. [Note: In early 2005, Compassion in Dying
(CID) merged with the Hemlock Society. The combined organization is now
called Compassion & Choices (C & C).] After being
unconscious for 65 hours, he awoke. It was only after his family told the
media about the botched assisted suicide that C & C publicly acknowledged
the case.(16) DHS issued a release saying it "has no authority
to investigate individual Death with Dignity cases."(17)
-
Referring to DHS's ability to look into complications, Dr. Hedberg explained
that "we are not given the resources to investigate" and "not
only do we not have the resources to do it, but we do not have any legal
authority to insert ourselves."(18)
-
David Hopkins, Data Analyst for the Eighth Annual Report said, "We do not
report to the Board of Medical Examiners if complications occur; no, it is not
required by law and it is not part of our duty."(19)
In the Netherlands, assisted-suicide complications and problems are not
uncommon. One Dutch study found that, because of problems or
complications, doctors in the Netherlands felt compelled to intervene (by giving
a lethal injection) in 18% of cases.(20)
This led Dr. Sherwin Nuland of
Yale University of Medicine to question the credibility of Oregon's lack of
reported complications. Nuland, who favors physician-assisted suicide,
noted that the Dutch have had years of practice to learn ways to overcome
complications, yet complications are still reported. "The Dutch
findings seem more credible [than the Oregon reports]," he wrote.(21)
Similarly, a member of the British Parliament questioned the lack of
reported complications associated with assisted suicide in Oregon.
After hearing witnesses from Oregon claim that there had been no
complications (other than "regurgitation") associated with more
than 200 assisted-suicide deaths, Lord McColl of Dulwich, a surgeon,
questioned that assertion.
He said that, in his practice as a physician, "if any surgeon or
physician had told me that he did 200 procedures without any complications,
I knew he possibly needed counseling and had no insight. We come
here and I am told there are no complications. There is something strange
going on."(22)
Assisted-suicide deaths of patients with dementia
Official Reports: 0 (Official reports do not
contain this category.)
Actual Number: Unknown
- Kate Cheney, 85, died of assisted suicide under Oregons law even though she reportedly was suffering from early dementia. Her own
physician declined to provide the lethal prescription. When counseling to determine her
capacity was sought, a psychiatrist determined that she was not eligible for assisted
suicide since she was not explicitly seeking it, and her daughter seemed to be
coaching her to do so. She was then taken to a psychologist who determined that she was
competent but possibly under the influence of her daughter who was "somewhat
coercive." Finally, a managed care ethicist, who was overseeing her case,
determined that she was qualified for assisted suicide, and the drugs were prescribed.
(23)
- Even if a patient is competent when the prescription is written, that
may not be the case when the lethal drugs are taken. Dr. Hedberg
acknowledged that there is no assessment of patients after the prescribing
is completed.
"Our job is to make certain that all the steps happened up to the
point the prescription was written,"(24) she said. "In
fact, after they write the prescription, the physician may not keep
track of that patient....[T]he law itself only provides for writing the
prescription, not what happens afterwards."(25)
Assisted-suicide deaths of depressed patients
Official Reports: 0 (Official reports do not
contain this category.)
Actual Number: Unknown
- The first known assisted-suicide death under the Oregon law was that of a woman in her
mid-eighties who had been
battling breast cancer for twenty-two years. Two doctors, including her own physician who
believed that her request was due to depression, refused to prescribe the lethal drugs.
Then Compassion in Dying (CID) became involved. Dr. Peter Goodwin, medical director of
CID,(26) determined that she was an "appropriate candidate" for death and
referred her to a doctor who provided the lethal prescription. In an audiotape, made two
days before her death and played at a CID press conference, the woman said, "I will be
relieved of all the stress I have."(27)
- In 2001, Dr. Peter Reagan, an assisted-suicide advocate affiliated
with CID, gave Michael Freeland a prescription for lethal drugs under
Oregon's law. Freeland, 64, had a 43-year history of acute
depression and suicide attempts. However, when Freeland and his daughter
went to see Dr. Reagan about arranging a legal assisted suicide, Reagan
said he didn't think that a psychiatric consultation was
"necessary."(28)
Under the assisted suicide law, depressed or mentally ill patients can
receive assisted suicide if they do not have "impaired
judgment."(29) Concerning the decision to refer for a
psychological evaluation, Dr. Kohn said, "According to the law, it's up
to the docs' discretion."(30) During the last year for which reports are available, only 5% of patients
were referred for a psychological evaluation or counseling before
receiving a prescription for assisted suicide.(31)
Assisted-suicide requests based on financial concerns
Official Reports: 7
Actual number: Unknown
Data about reasons for requests is based on prescribing doctors'
understanding of patients' motivations. It is possible that
financial concerns were much greater than reported. According to
official reports, 36.5% of patients whose deaths were reported
were on Medicare (for senior citizens) or Medicaid (for the poor) and an
additional 1% had no insurance.(32) However, after the second annual report, the reports have not
differentiated between Medicare and Medicaid patients dying from assisted
suicide. Oregon's Medicaid program pays for assisted suicide (33) but not for many other
medical interventions that patients need and want.
Patients who received lethal dose more than 6 months before death
Official Reports: 2 or 4 (After 2nd year, official
reports deleted category.)
Actual Number: Unknown
Lethal prescriptions under the Oregon law are supposed to
be limited to patients who have a life expectancy of six months or less.(34)
- However, one patient was still alive 17 months after the lethal drugs
were prescribed,(35) and, during the first two years of the law's implementation, at least
one lethal dose was prescribed more than 8 months before the patient took it.(36)
The DHS is not authorized to investigate how physicians determine their patients
diagnoses or life expectancies.(37)
- According to the Oregon Medical Association's Chief Operating
Officer, Jim Kronenberg, most physicians have told him that trying to
predict that a patient has less than six months to live "is a
stretch." "Two hours, a day, yes, but six months is
difficult to do," he explained.(38)
- Dr. Peter Rasmussen, an advisory board member of the Oregon
chapter of C & C,(39) has been involved in Oregon
assisted-suicide deaths numbering into double digits. He said
life expectancy predictions for a person entering the final phase of
life are inaccurate. He dismissed this as unimportant, saying,
"Admittedly, we are inaccurate in prognosticating the time of
death under those circumstances, we can easily be 100 percent
off, but I do not think that is a problem. If we say a
patient has six months to live and we are off by 100 percent and it
is really three months or even twelve months, I do not think the
patient is harmed in any way...."(40)
Shortest length of time reported for prescribing
doctor-patient relationship
Official Reports: Less than 1 week
Actual length: Unknown
Oregon's assisted-suicide law requires that at least 2 weeks elapse between the
patient's first and last requests for lethal drugs.(41) Nonetheless, for the
third through eighth years, the doctor-patient relationship in some reported
assisted-suicide cases was under one week.(42) Thus, official reports
indicate that either
some physicians are not complying with the 2 week requirement or they step in to write
an assisted-suicide prescription after other physicians refused.
Dr. Hedberg stated that there have been a number of cases over the years
in which guidelines were not followed, including cases where doctors
prescribed the lethal drugs without waiting for fifteen days as the law
requires.(43)
First physician asked agreed to write prescription
Official Reports: 27 (41%) (After 3rd year, official
reports deleted category.)
Actual number: Unknown
"Many patients who sought assistance with suicide had to ask more than one
physician for a prescription for lethal medication."(44) Patients
or their families can "doctor shop" until a willing physician is found. There
is no way to know, however, why the previous physicians refused to lethally prescribe
(i.e. the patient was not terminally ill, had impaired judgment, etc.), since
non-prescribing
physicians are not interviewed for the official state reports. The
only physicians interviewed for official reports are those who actually
wrote lethal drug prescriptions for patients.(45)
The unwillingness of many physicians to write lethal prescriptions led
one HMO to issue a plea for physicians to facilitate assisted suicide and has
also resulted in an assisted-suicide advocacy organization's involvement in most
assisted-suicide cases.
- HMO's efforts to facilitate assisted suicide
On August 6, 2002, Administrator Robert Richardson, MD of Oregon's
Kaiser Permanente sent an e-mail to doctors affiliated with
Kaiser, asking doctors to contact him if they were willing to act as
the “attending physician” for patients requesting assisted
suicide. According to the message, the HMO needed more willing physicians because, “Recently
our ethics service had a situation where no attending MD could be
found to assist an eligible member in implementing the law for three
weeks....” (46)
Gregory Hamilton, MD, a Portland
psychiatrist pointed out that the Kaiser message caused concern for
several reasons. “This
is what we’ve been worried about: Assisted suicide would be
administered through HMOs and by organizations with a financial stake
in providing the cheapest care possible,” he said. Furthermore, despite promoters’ claims that assisted suicide
would be strictly between patients and their long time, trusted
doctors, the overt recruitment of physicians to prescribe the lethal
drugs indicated that those claims were not accurate. Instead, “if someone wants assisted suicide, they go to an
assisted-suicide doctor – not their regular doctor.”(47)
Kaiser’s Northwest Regional Medical
Director Allan Weiland, MD, called Hamilton’s comments “ludicrous
and insulting.” (48) However, it appears that Hamilton was correct, as
the involvement of an assisted-suicide advocacy group indicates.
-
Assisted-suicide
advocacy group involved in majority of assisted-suicide deaths
If a physician opposes assisted
suicide or believes the patient does not qualify under the law, C
& C or its predecessor organizations has often arranged the death. According to Dr. Peter Goodwin,
the group’s former medical director, about
75% of those who died using Oregon’s assisted-suicide law
through the end of 2002 did so with the organization’s
assistance.(49) During the
2003 calendar year, it was involved in 79% of such deaths.(50)
According to Dr. Elizabeth Goy of Oregon Health Science University,
the assisted-suicide advocacy organization sees "almost 90% of
requesting Oregonians."(51)
.... OTHER
TROUBLING ASPECTS OF ASSISTED SUICIDE IN OREGON.
No family notification required before a doctor
helps a loved one commit suicide
Family notification is only recommended, but not required, under
Oregon's assisted-suicide law.(52) The first time that a family
learns that a loved one was considering suicide could be after the
death has occurred.
Prescribing doctors decide what
"residency" means
Under Oregon's law, a patient must be a resident of
Oregon. Residence can be demonstrated by means that include,
but are not limited to, a driver's license or a voter
registration.(53) According to Dr. Hedberg, "It is up
to the doctor to decide" whether the person is a
resident. There is no time element during which one must
have lived in Oregon. "If somebody really wanted to
participate, they could move from their home state," she
said. "I do not think it happens very much..."(54)
Pain control has become increasingly inadequate in Oregon
As of 2004, nurses reported that the inadequacy of meeting
patients' pain needs had increased "up to 50% even though the
emphasis on pain management has remained the same or is slightly
more vigorous...Most of the small hospitals in the state do not
have pain consultation teams at all," said Sue Davidson
of the Oregon Nurses Association.(55)
.....
As other jurisdictions consider Oregon-type laws, it remains to be seen whether
decision-makers will rely on the deceptively rosy picture painted
by assisted-suicide supporters, or on the reality of the Oregon
experience.
Endnotes:
(1) ORS 127.865 §3.11.
(2) See: "The Oregon Experience" at http://www.internationaltaskforce.org/orexp.htm.
(3) DHS, "Eighth Annual Report on Oregon’s Death with
Dignity Act," March 9, 2006. (http://egov.oregon.gov/DHS/ph/pas/docs/year8.pdf)
(4) Linda Prager, "Details emerge on Oregon’s first
assisted suicides, " American Medical News, Sept. 7, 1998.
(5) Joe Rojas-Burke, "Suicide critics say lack of problems
in Oregon is odd," Oregonian, Feb. 24, 2000.
(6) Oregon Health Division, CD Summary, vol. 48, no. 6
(March 16, 1999), p. 2. (http://www.ohd.hr.state.or.us/chs/pas/pascdsm2.htm)
(7) Supra note 3, p. 23. The annual report states that the
presence of the attending physician in the 48 out of 246 reported
deaths is 28%, however the calculation is mathematically
inaccurate. The correct calculation is 19.5%.
(8) DHS, "Fifth Annual Report on Oregon’s Death with
Dignity Act," March 6, 2003, p. 9. (http://www.ohd.hr.state.or.us/chs/pas/year5/ar-index.cfm)
(9) Testimony of Dr. Katrina Hedberg before the House of Lords
Select Committee on the Assisted Dying for the Terminally Ill
Bill,
Assisted Dying for the Terminally Ill Bill [HL],
Volume II: Evidence, Apr. 4, 2005, p. 263, question 597.
(Hereafter referred to as HL.)
(10) Ibid., p. 259, question 567.
(11) Testimony of Dr. Melvin Kohn, HL, p. 263, question
598.
(12) Erin Hoover, "Dilemma of assisted suicide: When?"
Oregonian, Jan. 17,1999 and Erin Hoover, "Man with
ALS makes up his mind to die," Oregonian, March 11,
1999.
(13) Testimony of Dr. Katrina Hedberg, HL, p. 267, question
621.
(14) Audio tape on file with author. Also see Catherine
Hamilton, "The Oregon Report: What’s Hiding behind the
Numbers?" Brainstorm, March 2000 (http://www.brainstormnw.com);
David Reinhard, "The pills don’t kill: The case, First of
two parts," Oregonian, March 23, 2000 and David
Reinhard, "The pills don’t kill: The cover-up, Second of
two parts," Oregonian, March 26, 2000.
(15) Johanna H. Groenewoud et al, "Clinical
Problems with the Performance of Euthanasia and Physician-Assisted
Suicide in the Netherlands," 342 New England Journal of
Medicine (Feb. 24, 2000), pp. 553-555.
(16) Associated Press, "Assisted suicide attempt
fails," March 4, 2005.
(17) DHS news release, "No authority to investigate Death
with Dignity case, DHS says," March 4, 2005.
(18) Testimony of Dr. Katrina Hedberg, HL, p. 266, question
615.
(19) Testimony of David Hopkins, HL, p. 259-260, question
568.
(20) Supra note 15.
(21) Sherwin Nuland, "Physician-Assisted Suicide and
Euthanasia in Practice," 342 New England Journal of
Medicine (Feb. 24, 2000), pp. 583-584.
(22) Remarks by Lord McColl of Dulwich, a member of the House of
Lords Select Committee on the Assisted Dying for the Terminally
Ill Bill, HL, p. 334, question 956. (Emphasis added.)
(23) Erin Barnett, "A family struggle: Is Mom capable of
choosing to die?" Oregonian, Oct. 17, 1999.
(24) Testimony of Dr. Katrina Hedberg, HL, p. 259, question
566. (Emphasis added.)
(25) Ibid., p. 259, question 567. (Emphasis added.)
(26) Dr. Peter Goodwin was an Associate Professor (now
professor emeritus) in the Department of Family Medicine at the
Oregon Health Science University in Portland, Oregon and was
Chair of Oregon Right to Die during the campaign to pass Oregon’s
assisted-suicide law. He had been active in the Hemlock Society.
Speaking at a 1993 Hemlock conference in Orlando, Florida, he
explained that he favored both the lethal injection and assisted
suicide, but he realized that most people were not yet ready to
accept the former so incremental steps would need to be taken.
(27) Erin Hoover and Gail Hill, "Two die using suicide
law; Woman on tape says she looks forward to relief," Oregonian,
March 26, 1998; Kim Murphy, "Death Called 1st
under Oregon’s New Suicide Law," Los Angeles Times,
March 26, 1998; and Diane Gianelli, "Praise, criticism follow
Oregon’s first reported assisted suicides," American
Medical News, Apr. 13, 1998.
(28) N. Gregory Hamilton, M.D. and Catherine Hamilton, M.A.,
"Competing Paradigms of Responding to Assisted-Suicide
Requests in Oregon: Case Report," presented at the American
Psychiatric Association Annual Meeting, New York, New York, May 6,
2004. (http://www.pccef.oorg/articles/art28.htm)
(29) ORS 127.825 §3.03.
(30) Andis Robeznieks, "Assisted-suicide numbers in
Oregon," American Medical News, Apr. 5, 2004.
(31) Supra note 3, p. 23, Table 4.
(32) Ibid.
(33) Erin Hoover Barnett, "Suicide coverage passes
review," Oregonian, Apr. 26, 1999.
(34) ORS 127.800 §1.01 (12), ORS 127.815 §3.01 (a), and ORS
127.820 §3.02.
(35) Supra note 28.
(36) Department of Human Services (DHS), Oregon Health Division
(OHD), "Oregon’s Death with Dignity Act: The Second Year’s
Experience," Feb. 23, 2000, Table 2. (http://www.ohd.hr.state.or.us/chs/pas
/year2/ar-index.cfm)
(37) Katrina Hedberg et al, Letter to the Editor in response to
"The Oregon Report: Neutrality at OHD?," Hastings
Center Report, Jan.-Feb. 2000, p. 4.
(38) Testimony of Jim Kronenberg, HL, p. 312, question 842.
(Emphasis added.)
(39) Compassion and Choices of Oregon web site (http://www.compassionoforegon.org).
(Last accessed March 6, 2006.)
(40) Testimony of Dr. Peter Rasmussen, HL, pl 312, question
842. (Emphasis added.)
(41) ORS 127.840 §3.06 and ORS 127.850 §3.08.
(42) Supra note 3, p. 24, Table 4.
(43) Testimony of Dr. Katrina Hedberg, HL, p. 257, question
555.
(44) Amy Sullivan, Katrina Hedberg, David Fleming,
"Legalized Physician-Assisted Suicide in Oregon – The
Second Year," 342 New England Journal of Medicine
(Feb. 24, 2000), p. 603.
(45) Supra note 3, p. 9.
(46) Andis Robeznieks, "HMO query reignites
assisted-suicide controversy," American Medical News,
Sept. 9, 2002.
(47) Ibid.
(48) Ibid.
(49) Transcript of tape of Peter Goodwin, "Oregon," Jan. 11, 2003, presented at 13th National Hemlock
Biennial Conference, "Charting a New Course, Building on a
Solid Foundation, Imagining a Brighter Future for America’s
Terminally Ill," Jan. 9-12, 2003, Bahia Resort Hotel, San
Diego California.
(50) "Compassion in Dying of Oregon Summary of Hastened
Deaths," Data attached to Compassion in Dying of Oregon’s
IRS Form 990 for 2003.
(51) Testimony of Dr. Elizabeth Goy, HL, p. 291, question
768. (Goy is an assistant professor, Dept. of Psychiatry, School
of Medicine, OHSU, and has worked with Dr. Linda Ganzini in
formulating results of surveys dealing with Oregon's law.)
(52) ORS 127.835 §3.05.
(53) ORS 127.860 §3.10.
(54) Testimony of Dr. Katrina Hedberg, HL, p. 267, question
620. (Emphasis added.)
(55) Testimony of Sue Davidson, HL, p. 357-358, question
1098.
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